Wendy ([info]jadedusoliel) wrote in [info]polyamory,

My OSO Kimberly

Last night Kimberly [info]kimberlyonline , my finace's girlfriend for those who aren't clear as to the relationship, posted that she really might not make it, that unless the cancer goes away that what sent her to the ICU in the first place may send her there again and that they may not be able to patch her up next time. It's not like this is the first time I thought it might be possible, I mean she has cancer and it's metastasized, but this is the first time I thought it might be a reality. I love her. She has become such a great friend and champion for me. I've been lucky in my life that no one that I've been close to has died ( other than my great grandmother when I was very young but was a great grandmother it's to be expected and just a couple of weeks ago my Grandma Bartlett but her mind had gone a long time ago and her body was just wasting away with her soul trapped inside so I was more relieved), and now faced with seemingly real possibility I feel devasted, numb and so confused. I mean I love her damn it! That should carry weight with it. As irrational as it is for some reason I feel that just because I love her more than I ever dreamed possible that somehow my sheer force of love will heal her completely. I guess I've thought that from the beginning really, I guess that's why I've done everything I can to love her more and give her more. I mean she is such an amazing, beautiful, strong, loving, supportive, and caring person. I know that if she should die that she will NOT have failed and that she will NOT cease to exist. Her and I are Kemetic so we follow the Ancient Egyptian Gods and I know that she is the daughter of Nut and that when she dies (be it soon or in 50 years) she will join her mother in the heavens. I'll mis her if she goes though. I miss the cuddle parties when her, Dennis [info]saamun , and I would sleep together. Her on one side of Dennis, me on the other, with Dennis laying happily in between. Her and I have never been romantically involved but the love I hold for is more than just friendship. I mean she's my OSO (a term, for my non-poly friends, that refers to your partner's partner), my [info]saamun loves her very much and she brings him such joy that of course I love her. I can't help but love her like she was my own SO. I've watched Dennis get all gooey and lovey about her, I've watched the two of them share a deep magic of silence, content to just be in the other's arms and then there are time where all three of us have shared that silence. I love so much. We have laughed and cried together. My younger brother (16) and her oldest son (18) have become good friends. My brother (the best brother ever) Michael asks after David and her. I've watched those two boys both relatively quiet just talk and talk about videa games. If Kimberly hadn't come into my life than Michael would never have met David. All I can think about right now is ways to make the most of this time because if she makes it or not they'll be the memories.

I've thought about planning a trip to the Luxor with her, especially since [info]saamun has never been there, about taking another overnight trip up to Sedona, getting together all her friends, immediate family, and loved ones together at a picture studio and taking a whole bunch of pictures, I've even want to find away to get plane tickets and hotel fare to London because that's where she lived when she was younger, or even finding out where she's never been before that she's always wanted to go to and finding a way to take her there. With a hernaited disk that has kept me out of work it's not like I'm rolling dough but I'll do something for her, I have to, I love her and if I don't actively work to make her life more enriched than I feel helpless, pluse times like these are hard and whether she is going to die or not I want to move mountains to help make this time of struggle as beautiful for her as possible.

I wanted to share this here because I would love any support or thoughts anyone has. I've never been here before and I never understood before that being poly could involve hurting so much over the health and well being of your OSO. I didn't know you could love someone this much without ever becoming romatically involved.

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  • 26 comments

[info]ant_girl

March 17 2004, 07:30:29 UTC 8 years ago

I know there's nothing anyone can say to make things better, but your story is so touching it made me want to cry.

Love and strength to all of you.

[info]maestrodog

March 17 2004, 07:39:48 UTC 8 years ago

She's family

OF COURSE you can love someone a lot without getting romantically involved. She's your family too!

It's great that you want to do something special for her before she passes away.

I know there are programs like the Make-A-Wish foundation that grants wishes to sick children...you might want to ask the social worker if there are similar programs for disabled adults who want to do something nice for a dying family member.

Failing that, why not ask your friends or family for donations to help give your loved one her last wish? You'd be amazed at how people are willing to help for causes like that.

[info]greeklady

March 17 2004, 08:50:50 UTC 8 years ago

Please be nice and use more paragraphs. I cannot read this for any other reason that it is too hard on the eyes.

[info]owlslight

March 18 2004, 14:05:05 UTC 8 years ago

Excuse me if this seems harsh, I'm not really trying to be snarky, but...

Normally I would have no issue whatsoever with your suggestion (people may not realize things unless we tell them), but considering the content of the post - an OSO's imminent death - couldn't you have refrained from comment? Just this once? It just seems a bit petty to pick on someone's style of writing under such circumstances.

[info]greeklady

March 18 2004, 14:27:31 UTC 8 years ago

You are the one asking for imput. How can we give said imput if we can't read the post to begin with?

I appologise you see this as harsh. I don't believe it to be.

[info]owlslight

March 18 2004, 14:32:02 UTC 8 years ago

Um, no. I wasn't the one asking for input. I was just a fellow reader. Who didn't have any trouble reading the post.

Apologies from me to the original poster for even bringing this up. It just struck me as akin to kicking someone when they're down and that never sits well with me.

[info]cheshcat

March 19 2004, 20:30:23 UTC 8 years ago

Hello there, Greeklady. I must confess that I was also startled to read your comment and thought your point came out a bit harsher than you may have intended, given the circumstances of its writing.

Sometimes longer, more emotional outpourings can be difficult to read, as they are essentially directly downloaded from the psyche in freewritten forms. In which case, it is my choice to value process over product -- I often find it simplest to cut and paste the post into Word and then double-space it. Voila! Meaning can then be more easily construed and input constructed. :)

Best,
Chesh

[info]greeklady

March 21 2004, 18:13:15 UTC 8 years ago

Well thank you for the suggestion. I will go backand try it now that I am back from my vacation. I still feel I have serious imput I can give after all the cancer shit I have gone through with people who mean more to me than my family. I just didn't have the time to reread it.

I appreciate you not slamming me. I don't curb my words. They come out as they come out. It all is the presence of the mind of who is reading it as to how it is interpreted. If you know me you would know my tone isn't like people are jumping on the bandwagon about.

[info]elynne

March 19 2004, 11:41:21 UTC 8 years ago

Oh. It's you. Now everything makes so much more sense.

Writing a pedantic formatting "It's too hard for me to read this" reply to a post like this is one of the most viciously calloused, insensitive drama-whoring behaviors I've ever seen. If you didn't like the formatting of the post, you could have skipped over it without comment. The fact that you're unable to let go of the idea that the entire universe revolves around you long enough to keep your smart mouth shut and have a moment of empathy for somebody who is losing a loved one makes me sincerely sorry for anybody you may be in a relationship with.

[info]jadedusoliel

March 19 2004, 12:05:52 UTC 8 years ago

Thanks for speaking up. I'm adding you to my friend's list.

[info]red_girl_42

March 19 2004, 13:52:02 UTC 8 years ago

Writing a pedantic formatting "It's too hard for me to read this" reply to a post like this is one of the most viciously calloused, insensitive drama-whoring behaviors I've ever seen.

Ditto. Thanks for putting it so well.

I'm about the biggest grammar-nazi in existence, but geez...if someone is hurting and grieving then cut them some slack!

[info]greeklady

March 19 2004, 19:40:45 UTC 8 years ago

Because you know so much about me. The fact that a childhood sweetheart of mine is dying with stage 4 cancer in the neck. So not only does he get to die a painful death, he gets to look like a freak with a fist sized growth on his neck.

Or the fact that a woman who was more of a mother to me and my sister died from cancer. She had it in remission for over 20 years and someone hit her with the car and it grew back where the seat belt kept her from going through the window.

Or the fact that my best friends mom had both breasts removed from cancer and back then they didn't offer implants or reconstructive surgery to help her feel like a woman again. Or the fact that her ass hole husband treated her like less of a woman since they were gone.

You are right I know nothing about being sensitive to anything. Thank you so much about telling me about my life. Get off your soap box.

[info]jadedusoliel

March 19 2004, 20:20:47 UTC 8 years ago

I am so very sorry

I have question then: if all this is true then why did you feel it was more important to critize the style with which I wrote my post than either offer your support and understanding for situation you know comething about, or at least keep your mouth shut out of respect for the difficult time this is for me and my loved ones?

I am terribly sorry for all the tragedies you have endured.

As others have said to me here, no words I can offer will ease the pain that these situations can bring.

The terrible things you have gone through only make me wonder more why you felt the need to focus on something so utterly trivial in a post about something that is anything but trivial.

Look I even took the time to make sure the reply was broken up for you.

That way it is easier on your eyes.

Which is always what is most important to me.

I do want to say thank you for taking the time and energy to correct the terrible mistake I made in getting wrapped up in my own selfish pain and fear about losing my cherish loved one thereby forcing you to endure reading a post that was painful to your eyes (because skipping something that hurts your eyes is simply an unacceptable alternative).

Sorry if this seems harsh, I don't believe to be so.

[info]greeklady

March 21 2004, 18:19:24 UTC 8 years ago

Re: I am so very sorry

Because I understand the kind of pain cancer brings to one, makes me wonder even more why you need to lash out.

I wrote my post so you can either

a. go back and correct it.

b. next time try to make it readable

You are in a public forum and I didn't say anything harsh. I gave simple imput. Imput that will help me make greater imput if applied. But stay wrapped up in your pain and know that others have watched and are watching their loved ones die as we type and read this. That is fine. You can close your eyes and ears and realize this is so freaking trivial and move on in about a week or so.

Me, I have learned to grasp the good things in life while I have them since I have lost so much in so little time. I am moving on. You can do what ever you want.

[info]elynne

March 19 2004, 23:08:40 UTC 8 years ago

If you know so much about how she feels, what the hell makes you think that your response was appropriate? If anybody else had said to you what you said to her, don't you think maybe you would have felt perhaps a little tiny bit hurt? Or is it that, because you've dealt with so much pain and trauma in your own life, you just can't imagine anybody else having the nerve to call you out when you make a mistake? Sorry, hon - you were an asshole, there. I called you on it. You have a history of grief; that's bad. You were still an asshole. You will continue to be an asshole until you apologize - to her - for having been an asshole.

And maybe, when you've done that, I'll apologize for calling you on being an asshole.

[info]greeklady

March 21 2004, 18:10:16 UTC 8 years ago

Well Hello from one asshole to another. Because who are you to tell me what and how to do things? Unless you are the moderator you can kiss my ass

[info]elynne

8 years ago

[info]deedeebythebay

March 17 2004, 11:00:04 UTC 8 years ago

There are no words

There are no words of comfort I can give.

I can tell you you are doing everything right. Filling her days with love and joy and committment are beautiful.

Only one warning from people I know who work with hospice patients. Don't drown or smother her. If you know her well enough, watch and listen for clues that you are doing this. Because of the kind of person it sounds like she is, she may know what you are trying to do and may never tell you it is too much right then.

She's very lucky to have people like you to love her. May your remaining days with her be filled with joy and light and keep the memories. Cherish them.

Blessings on you.

[info]final_destiny

March 17 2004, 11:02:19 UTC 8 years ago

I wish I had the words. All I can say is that I wish and hope for the best, for everyone. Whoever she is, she's clearly a wonderful person. As clearly are you. All our wishes for you and your family.

[info]springdew

March 18 2004, 00:22:13 UTC 8 years ago

Your post made me cry with the beauty and the sadness. I hope you don't mind my linking to it. Love and hugs for your whole family, may you all blessed be.

[info]jadedusoliel

March 18 2004, 18:20:38 UTC 8 years ago

No I don't mind you linking to it at all. Thank you for your support.

[info]divaprime

March 18 2004, 02:23:10 UTC 8 years ago

My OSO, who I usually just refer to as my wife, even though she is het and I am bi, has polycystic kidney disease. I have severe arthritis. We take care of each other as well as our boys. We know we are facing her having to have a transplant in the next 5-15 years. We know I'll be in a wheelchair far sooner than I care to contemplate. We love each other very much and will support each other thru it all.

My heart goes out to you and your loves. We live in Vegas and could probably put you up if you would be happy with just visiting the Luxor instead of staying there. You can get me directly thru our PolyVegas yahoogroup http://groups.yahoo.com/group/PolyVegas

Best Wishes,
Renee

[info]jadedusoliel

March 18 2004, 19:22:34 UTC 8 years ago

I will talk to Kimberly and her husband Blake about it more and if you're cool with having the four of us over than cool. So I'll be getting in touch with you.

[info]einstein9073

March 18 2004, 02:32:52 UTC 8 years ago

Our words won't make it easier... but we/I am/are here for you if we can help.

[info]gramina

March 18 2004, 21:27:33 UTC 8 years ago

Just -- ((hugs)). ((Hugs)) and prayers for all of you.

[info]noveldevice

March 20 2004, 10:38:29 UTC 8 years ago

It's always hard to suddenly be faced with the reality that loving someone doesn't mean we can save them. It's tough, and it hurts, and there's nothing anyone can say that will make it better.

However, as long as you're there for her, you can make it a little easier for her, by letting her know that she's loved and that you will do what you can to take care of her.

I do have a little bit of advice, from my own experience. Don't treat her like she's made of glass. Treat her like you ordinarily would--she wants to be a person, and your beloved, not some frail creature that everyone tiptoes around. Make time for her, go to her doctor visits with her if you can, and when she's in the hospital, try to spend a little time with her every day. These are things that make a huge difference.

When my s/o was in the hospital after his stroke two and a half years ago, a young man who worked nearby and had been a casual friend visited him every day after work, and would sometimes come over on his lunch hour and hang out talking about computer games and martial arts with my s/o. It was a little thing to his friend, but it made my s/o feel like he had reasons to work hard on his recovery.
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